What It’s Like to Be a Rare Disease Adult With Stiff-Person Syndrome | The Mighty - adult stiff

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What It's Like to Be a Rare Disease Adult With Stiff-Person Syndrome I almost died at birth and had to wear metal leg braces and shoes for the first two years of my life in attempt to straighten my inward facing rigid legs and feet.

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Mar 12, 2018 · Stiff person syndrome (SPS) is a rare, progressive syndrome that affects the nervous system, specifically the brain and spinal cord. Symptoms may include extreme muscle stiffness, rigidity and painful spasms in the trunk and limbs, severely impairing mobility. Spasms can generate enough force to fracture bone.

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