Facts about Anencephaly | CDC - adult anencephalic

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Baby Rachel's Legacy: The Truth About Anencephaly adult anencephalic


Anencephaly is the absence of a major portion of the brain, skull, and scalp that occurs during embryonic development. It is a cephalic disorder that results from a neural tube defect that occurs when the rostral (head) end of the neural tube fails to close, usually between the 23rd and 26th day following conception. Strictly speaking, the Greek term translates as "no in-head" (that is Specialty: Medical genetics; pediatrics.

Anencephaly is a condition that prevents the normal development of the brain and the bones of the skull. This condition results when a structure called the neural tube fails to close during the first few weeks of embryonic development.

Anencephalic Baby. That's what it said. I had never heard of it before. But, almost 2 years later, I'm not only familiar with the word, but what it means for a child of mine. Death. I have spent hours, days and even weeks of time telling people about Rachel and the condition that took her from us.